This Washington, DC–based organization works to elevate uterine fibroids as a women’s health issue in hopes of driving change. The group gathers many of the nation’s most respected women’s health advocacy and policy-focused organizations to push for earlier diagnosis and improved treatment for women living with fibroids.
The Fibroid Foundation aims to serve as a voice for women living with fibroids, to create and support initiatives to find a cure for the condition and to advocate for ongoing funding of patient-sensitive fibroids research. The nonprofit also produces a community-oriented digital resource guide called Fibroids Health to empower women to advocate for themselves along their wellness journey.
Established in 1991, the Office of Women’s Health is a federal government agency that works to improve the health of women and girls through policy, education and innovative programs. Its OWH Helpline (800-994-9662) offers women suffering from uterine fibroids a wealth of resources. However, OWH doesn’t provide any medical advice or treatment.
Founded in Boston in 2012, RSP educates Black women affected by diseases of the reproductive system, including uterine fibroids, via evidence-based programs that focus on the broad spectrum of reproductive health and the social justice needs of Black women.
Since many hysterectomies performed to treat fibroids are medically unnecessary, this national network specializes in the nonsurgical treatment of uterine fibroids. Patients are treated using uterine fibroid embolization (UFE), an approach approved by the Food and Drug Administration. UFE allows patients to return home immediately after the procedure and resume normal activities within two to seven days. The centers prioritize women’s needs and provide patients with a personalized experience.
The White Dress Project empowers women suffering from fibroids through support, education and advocacy. The group believes that if women are educated about fibroids and treatment options, they will feel comfortable enough to share their stories and emboldened enough to wear white (due to heavy bleeding related to fibroids, many women with the condition do not wear white). The project’s peer-to-peer network White Dress Cares connects women living with fibroids to one another.